Submitted by Carol Ireland

I understand there is a deal that is great of, especially amongst ‘epilepsy parents’, following responses built in an ABC Brisbane tv news product from the evening of 19 September. The portion covered the story of a dad that is pleading because of the Queensland Government to permit their 8 12 months daughter that is old who’s got a regressive neurological disorder that triggers chronic several seizures, usage of medicinal cannabis oil while she actually is in medical center. Really a remark made with respect to the medical sector triggered the upset: “children in particular have presented in hospitals with comas and passed away from cannabis oil”. Epilepsy Action did some homework on this subject and I also share to you now the human body for the letter that i’ve written towards the Australian Medical Association.

“I relate to a news article on ABC tv from the night of 19 September 2016 about medicinal cannabis and kids with epilepsy, in specific the Peek family members. Reviews produced by you in this meeting have actually caused anger, concern plus in some situations worry in the epilepsy community. We write this letter within the hope that it serves to describe the good good reasons for this and also to look for your support in ameliorating the problem.

Within my part as CEO and Managing Director of Epilepsy Action Australia We have had significant experience of numerous families confronted with difficult choices in managing their child’s unrelenting and debilitating seizures as a consequence of epilepsy. Some parents in Australia have been willing to try anything to help reduce the severity and frequency of their child’s seizures and improve their quality of life in often dire circumstances. Parents, whom hoped that the youngster might react to cannabis oil, have desperately looked for use of any supply of ‘medicinal cannabis’ oil or tincture they are able to find, utilizing the knowledge that is uncomfortable it absolutely was considered an illicit medication in Australia.

Having presented during the Senate Inquiry in to the Regulator of Medicinal Cannabis Bill 2014, sitting in the Steering Committee when it comes to NSW Clinical studies, acting as a co-investigator when you look at the project that is PELICANNSW and QLD) and serving in the Board for the Lambert Initiative at Sydney University, I fully help appropriate and medical paths undertaken to supply clinically recommended, quality managed medicinal cannabis to people who have epilepsy, nonetheless high high quality research and changes to existing legislation does take time. Unfortunately, time unfortuitously just isn’t something which a number of these young ones have actually.

We comprehend the issue that is legal While medicinal cannabis (or cannabis) usage had been lawful in Australia before the 1950s, cannabis cultivation and use has become unlawful in most Australian jurisdictions for almost any purpose, although the international medication treaties to which we have been party let the medical and clinical usage of medications whoever recreational use is forbidden. Obviously Australians take advantage of the medical utilization of drugs such as for instance morphine, ketamine, cocaine and amphetamine, despite their recreational usage being forbidden.

We additionally realize that individual clinical studies for CBD and epilepsy have been in very early stages, and that while CBD happens to be analyzed as a prospective anti-epileptic in humans, these very early research reports have not been followed up with bigger and much more convincing clinical studies over a longer time.

Having said that, we comprehend from social media marketing as well as other sources that a number of customers (parents) in Australia are gaining use of medicinal cannabis to treat seizures. Offered the catastrophic and debilitating nature of their children’s epilepsy conditions it’s not hard to comprehend their desperation. These moms and dads report enormous improvement within the extent and regularity of the children’s seizures and general standard of living. Nonetheless EAA is needless to say worried that these customers can be utilizing home-grown and black colored market cannabis of uncertain medicinal quality, and these hopeless moms and dads are breaking regulations.

We recognize that you can find inherent dangers being used of unregulated cannabinoid based services and products nonetheless if there clearly was laboratory that is legal available, the potential risks of possible contaminates will be avoided and parents could be alert to the cannabinoid ratios and terpene profiles associated with the item they truly are utilizing. This will certainly offer sensible and effective medium term risk mitigation.

I would like to refer specifically to your reviews into the television meeting that “children in particular have actually presented in hospitals with comas and passed away from cannabis oil”. If there have been a young son or daughter death in Australia linked to cannabinoid intoxication a Coroner’s inquest could have been expected to investigate the death. We can’t find any such listing.

I am aware which you stated that your information came from Colorado that you spoke yesterday to a medicinal cannabis advocate and. From our research, i have to assume that your particular feedback in reality connect with the ingestion that is accidental of edibles (usually owned by the moms and dad or other adult) as opposed to the kiddies being administered medicinal cannabis oil for particular health problems. It is more problem of labelling, son or daughter evidence packaging and grownups being responsible in keeping their item.

I really believe it could be appropriate, as well as very valued by moms and dads within the epilepsy community, in the event that you would retract the statement made, or at the very least provide detail that is further accurate context for the declaration. We provide help of my organization to aid in just about any method feasible with education and help in this case.

Finally, I wish to refer one to a write-up within the health Journal of Australia by David G Pennington (Med J Aust 2015; 202 (2): 74-75) en titled “Australia is behind the days regarding the use that is medical of. It will make for interesting reading with this hard topic.”

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